.
===WELCOME!=== 
.Registrations have now been closed for the genetic studies for Multiple Sclerosis led by Dr. M. Kotze.....  
Results will be posted on this website as they become available for dissemination.

  We are very grateful to all who participated!

The help you gave us has been invaluable and though we have not garnered funding sufficient to collect samples from the bulk of the registrants as we had originally hoped to, we have enough for analyzing to be able to expect some important results.

The symptom information that you have given us has helped enormously in the understanding of this new form of MS!

Thanks to you, we are now much closer to our goal of making a definative genetic test available.


 
TELLTALE SYMPTOMS (most of which are also porphyria symptoms)

  • CNS Damage and Possibly Disability
  • Overall Pallor and Local Cyanosis (bluish nailbeds)
  • Severe to Mild Abdominal Distress During Exacerbations 
  • Constipation During Exacerbations (can also be diarrhea instead)
  • Weight Loss During Exacerbations
  • Exacerbation During Last Trimester of Pregnancy
  • Dark, Possibly Reddish Urine During Exacerbations
  • Sun Induced Rash Following Exacerbations--appears ONLY in 

    • sun-exposed areas and consists of redness and mild puffiness soon followed by itchiness 
  • Excessive Craving For Salt
  • Tendency To Low Blood Pressure
  • Bright Flashes of Light in the Peripheral Vision

    •  


    Registration
    .

    YOUR FULL NAME

    DATE OF BIRTH

    YOUR STREET ADDRESS

    YOUR CITY

    YOUR STATE (if USA resident)

    ZIP OR POSTAL CODE

    E-MAIL ADDRESS

    COMPLETE TELEPHONE #



    Once you have filled in the above registration information, please continue by filling
    in the questionnaire below. 
    Please do so only after having filled in the registration information above.  If your e-mail address is not properly typed into the box above, I will be unable to reply because your e-mail address will not otherwise appear.

    Multiple Sclerosis
    Genetic Screening Project Questionnaire

    (Please click on the appropriate responses)
    1. I have been diagnosed with MS
      2.  Yes
      No
    2. I have been tested for MS
      3.  Yes
      No
    3. I have close relatives diagnosed with MS 
      4.  Yes
      No
    4. I have been diagnosed with Porphyria 
      5. Yes
      No
    5. I have been tested for Porphyria 
      6.  Yes
       No
    6. I have close relatives diagosed with Porphyria 
      7.  Yes
      No
    7. I have been diagnosed with or treated for anemia
      8.  Yes
      No
    8. Sun Induced Rash Following Exacerbations   
      9. Yes
      No
    9. Overall Pallor and/or Local Cyanosis (bluish nail beds)
      10. Yes
      No
    10. Severe to Mild Abdominal Distress During Exacerbations (pain or cramps or vomiting)
      11.  Yes
      No
    11. Constipation During Exacerbations (or diarrhea instead)
      12.  Yes
      No
    12. Weight Loss During Exacerbations
      13.  Yes
      No
    13. Exacerbation During Last Trimester of Pregnancy 
      14. Yes
      No
    14. Dark, Possibly Even Reddish, Urine During Exacerbations
      15. Yes
      No
    15. Abnormally Strong Craving For Salt
      16. Yes
      No
    16. Tendency To Low Blood Pressure
      17.  Yes
      No
    17. Bright Flashes of Light in Peripheral Vision 
      18. Yes
      No
    18. I am of Scottish descent 
      19.  Yes
       No
    Your comments:


    (Please write me instead at Bobbie  Bobbie and include all the requested information if you are not using a forms-capable browser or if your address won't fit in the spaces provided)

    Thank You For Helping All Who Have MS!

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